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Req-1209Family member affiliations2013 FormatThe system MAY have access to parents, guardians, siblings and patients' affiliation with religious organizations, community organizations, gangs, etc.Parents and Guardians and Family Relationship DataNormative Statementsno
Req-1213Distinguish guardian from guarantor2013 Format
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You are viewing the Abridged Children's EHR Format. To view the Full Children's EHR Format, you must first agree to the HL7 License Agreement.
Parents and Guardians and Family Relationship DataNormative Statementsno
Req-89Prompts for local neonatal screening2013 FormatThe system SHALL have the ability to prompt the care provider to perform all locally required neonatal screening tests.Newborn ScreeningNormative Statementsno
Req-90Neonatal screening education2013 FormatThe system SHOULD provide prompting, documentation of teaching, and education materials about neonatal screening for parents and guardians.Newborn ScreeningNormative Statementsno
Req-823Newborn Screening Decision Support2013 Format

ONC and HRSA are actively developing use cases and other health IT resources around newborn screening. A use case is available at: http://www.hhs.gov/healthit/usecases/documents/NBSDetailedUseCase.pdf [1]. The U.S. National...

ONC and HRSA are actively developing use cases and other health IT resources around newborn screening. A use case is available at: http://www.hhs.gov/healthit/usecases/documents/NBSDetailedUseCase.pdf [1]. The U.S. National Library of Medicine (NLM has published the Newborn Screening Coding and Terminology to promote and facilitate the use of electronic health data standards for the conditions recommended for screening by the HHS Secretary's Advisory Committee on Heritable Disorders in Newborns and Children (ACHDNC This is available at: http://newbornscreeningcodes.nlm.nih.gov/ [2].

The National Newborn Screening and Genetics Resource Center (http://genes-r-us.uthscsa.edu/ [3] provides continuously updated information on the conditions screened for in each state. In addition, links are available to each state program. The Resource Center also provides educational materials for clinicians and family members.
Well-described clinical algorithms have been developed to guide general pediatricians and subspecialists in the process of newborn screening. These are available at: http://pediatrics.aappublications.org/content/121/1/192.abstract[4]. Exit Disclaimer The requirements were designed to support these algorithms. In addition, these requirements support the transition from diagnosis through screening to chronic condition management and long-term follow-up as described in Kemper AR, Boyle CA, Aceves J, et al. Long-term follow-up after diagnosis resulting from newborn screening: statement of the US Secretary of Health and Human Services' Advisory Committee on Heritable Disorders and Genetic Diseases in Newborns and Children. Genet Med. 2008:10:259-261

Links:
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[1] http://www.hhs.gov/healthit/usecases/documents/NBSDetailedUseCase.pdf
[2] http://newbornscreeningcodes.nlm.nih.gov/
[3] http://genes-r-us.uthscsa.edu/ Exit Disclaimer
[4] http://pediatrics.aappublications.org/content/121/1/192.abstract Exit Disclaimer
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Newborn ScreeningHeaderno
Req-822Newborn Screening Follow-Up2013 Format
The goal of newborn screening is to identify a wide range of conditions that can potentially benefit from early detection during the presymptomatic or early symptomatic period. Historically, newborn screening has been based on dried...
The goal of newborn screening is to identify a wide range of conditions that can potentially benefit from early detection during the presymptomatic or early symptomatic period. Historically, newborn screening has been based on dried blood spot analysis by state public health departments. More recently, point-of-service testing in the nursery (e.g., newborn hearing screening has been included. Another point-of-service test that will likely be added in the coming year to newborn screening is pulse oximetry to detect critical cyanotic congenital heart disease. Newborn screening is expanding at a rapid rate. Although the US Secretary of Health and Human Services makes recommendations about what should be included as part of newborn screening, individual states are responsible for developing their own panel, including the threshold for a positive test. Some states require retesting of all newborns. States have varying methods of short and long-term follow-up for those that have tested positive. Some parents may choose to have supplemental newborn screening through private laboratories. This is outside of the scope of this requirement statement.

ONC and HRSA are actively developing use cases and other health IT resources around newborn screening. A use case is available at: http://www.hhs.gov/healthit/usecases/documents/NBSDetailedUseCase.pdf. The U.S. National Library of Medicine (NLM has published the Newborn Screening Coding and Terminology to promote and facilitate the use of electronic health data standards for the conditions recommended for screening by the HHS Secretary's Advisory Committee on Heritable Disorders in Newborns and Children (ACHDNC This is available at: http://newbornscreeningcodes.nlm.nih.gov/.

The National Newborn Screening and Genetics Resource Center (http://genes-r-us.uthscsa.edu/ provides continuously updated information on the conditions screened for in each state. In addition, links are available to each state program. The Resource Center also provides educational material for clinicians and family members.
Well-described clinical algorithms have been developed to guide general pediatricians and subspecialists in the process of newborn screening. These are available at: http://pediatrics.aappublications.org/content/121/1/192.abstract. Exit Disclaimer The requirements were designed to support these algorithms. In addition, these requirements support the transition from diagnosis through screening to chronic condition management and long-term follow-up as described in Kemper AR, Boyle CA, Aceves J, et al. Long-term follow-up after diagnosis resulting from newborn screening: statement of the US Secretary of Health and Human Services' Advisory Committee on Heritable Disorders and Genetic Diseases in Newborns and Children. Genet Med. 2008:10:259-261.
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Newborn ScreeningHeaderno
Req-819Document appropriate newborn screening2013 FormatThe system SHALL document completion of the steps described in http://pediatrics.aappublications.org/content/121/1/192.abstract. Exit DisclaimerNewborn ScreeningNormative Statementsno
Req-818Support appropriate newborn screening and follow-up2013 FormatThe system SHALL incorporate the algorithms described in http://pediatrics.aappublications.org/content/121/1/192.abstract Exit Disclaimer to assure screening has been accomplished and that results have been followed up.Newborn ScreeningNormative Statementsno
Req-800Newborn dried blood spot collection time and state2013 Format
The system SHALL record the state and collection date and time with precision no less than the nearest clock hour for when each newborn screening dried blood spot was collected. Multiple samples at multiple times...
The system SHALL record the state and collection date and time with precision no less than the nearest clock hour for when each newborn screening dried blood spot was collected. Multiple samples at multiple times may be collected, such as in those states that require repeat testing or on prematurely born neonates.
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Newborn ScreeningNormative Statementsno
Req-801Record time when mandated point-of-service testing occurred2013 Format
The system SHALL record the date and time with precision no less than the nearest clock hour when a mandated non-blood spot newborn screening occurred, as well as the specific modality and the results of...
The system SHALL record the date and time with precision no less than the nearest clock hour when a mandated non-blood spot newborn screening occurred, as well as the specific modality and the results of the screen using standard codified terms (e.g., SNOMED-CT Presently, this is only newborn hearing screening. Multiple screenings at multiple times may occur.
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Newborn ScreeningNormative Statementsno
Req-802Record refusal of newborn dried blood spot testing2013 FormatThe system SHALL capture refusal of newborn dried blood spot if such screening is refused by the child's legal guardian.Newborn ScreeningNormative Statementsno
Req-803Record refusal of point-of-service testing2013 FormatThe system SHALL capture refusal of non-blood spot newborn screening (e.g., newborn hearing screening if such screening is refused by the child's legal guardian.Newborn ScreeningNormative Statementsno
Req-812Record reporting of newborn screening results to the state health department2013 FormatThe system SHALL record that the diagnosis for those with an out-of-range or insufficient newborn screening result was provided to the state public health department according to their guidelines.Newborn ScreeningNormative Statementsno
Req-813Record parental notification of newborn screening diagnosis2013 FormatThe system SHALL record that the child's legal guardians were notified of any newborn screening-related diagnosis.Newborn ScreeningNormative Statementsno
Req-814Provide educational material from health department for newborn screening conditions2013 FormatThe system SHOULD provide parent educational material available from the state public health department regarding the appropriate newborn screening-related condition.Newborn ScreeningNormative Statementsno
Req-815Record diagnoses on patient problem summary list2013 FormatThe system SHOULD include all diagnoses resulting from newborn screening other than 'Normal' on a patient problem summary list.Newborn ScreeningNormative Statementsno
Req-809Report results of non-blood spot newborn screening tests2013 FormatThe system SHALL be able to report results of non-blood spot newborn screening tests to the state public health department according to their guidelines.Newborn ScreeningNormative Statementsno
Req-810Provide ACT sheets to clinicians after out-of-range newborn screening result2013 FormatThe system SHOULD provide guidance to clinicians about the management of an out-of-range newborn screening result by providing the HRSA-funded ACT sheets.Newborn ScreeningNormative Statementsno
Req-811Record final diagnosis for abnormal newborn screening results2013 FormatThe system SHALL record the final diagnosis for those with out-of-range or insufficient newborn screening results. This includes 'Normal' or the particular diagnosis.Newborn ScreeningNormative Statementsno
Req-1103Store codified newborn screening results2013 FormatThe system SHALL be able to store standardized codified newborn screening results to the degree to which they are made available.Newborn ScreeningNormative Statementsno
Req-1146Newborn Screening - Testing2013 Format
The goal of newborn screening is to identify a wide range of conditions that can potentially benefit from early detection during the presymptomatic or early symptomatic period. Historically, newborn screening has been based on dried...
The goal of newborn screening is to identify a wide range of conditions that can potentially benefit from early detection during the presymptomatic or early symptomatic period. Historically, newborn screening has been based on dried blood spot analysis by state public health departments. More recently, point-of-service testing in the nursery (e.g., newborn hearing screening has been included. Another point-of-service test that will likely be added to newborn screening is pulse oximetry to detect critical cyanotic congenital heart disease. Newborn screening is expanding at a rapid rate. Although the US Secretary of Health and Human Services makes recommendations about what should be included as part of newborn screening, individual states are responsible for developing their own panel, including the threshold for a positive test. Some states require retesting of all newborns. States have varying methods of short and long-term follow-up for those that have tested positive. Some parents may choose to have supplemental newborn screening through private laboratories. This is outside of the scope of these requirements.
ONC and HRSA are actively developing use cases and other health IT resources around newborn screening. A use case is available at:http://www.hhs.gov/healthit/usecases/documents/NBSDetailedUseCase.pdf. The U.S. National Library of Medicine (NLM has published the Newborn Screening Coding and Terminology to promote and facilitate the use of electronic health data standards for the conditions recommended for screening by the HHS Secretary's Advisory Committee on Heritable Disorders in Newborns and Children (ACHDNC This is available at: http://newbornscreeningcodes.nlm.nih.gov/.
The National Newborn Screening and Genetics Resource Center (http://genes-r-us.uthscsa.edu/ provides continuously updated information on the conditions screened for in each state. In addition, links are available to each state program. The Resource Center also provides educational material for clinicians and family members.
Well-described clinical algorithms have been developed to guide general pediatricians and subspecialists in the process of newborn screening. These are available at:http://pediatrics.aappublications.org/content/121/1/192.abstract. The requirements were designed to support these algorithms. In addition, these requirements support the transition from diagnosis through screening to chronic condition management and long-term follow-up as described in Kemper AR, Boyle CA, Aceves J, et al. Long-term follow-up after diagnosis resulting from newborn screening: statement of the US Secretary of Health and Human Services' Advisory Committee on Heritable Disorders and Genetic Diseases in Newborns and Children. Genet Med. 2008:10:259-261.
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Newborn ScreeningHeaderno
Req-2015Newborn dried blood spot collection time and state2015 Priority List
The system where the blood spot test was performed shall record the State and collection date and time with precision to no less than the nearest clock hour for when each newborn screening dried blood...
The system where the blood spot test was performed shall record the State and collection date and time with precision to no less than the nearest clock hour for when each newborn screening dried blood spot was collected. Multiple samples at multiple times may be collected, such as in States that require repeat testing or on prematurely born neonates.
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Newborn ScreeningNormative Statementyes
Req-2016Record parental notification of newborn screening diagnosis2015 Priority ListThe system shall be able to track that the child's legal guardians were notified of any newborn screening-related diagnosis.Newborn ScreeningNormative Statementyes
Req-2017Record diagnoses on patient problem summary list2015 Priority ListThe system shall be able to record all diagnoses resulting from newborn screening other than 'Normal' and all outstanding newborn screening tasks that have not been performed on a patient problem summary list.Newborn ScreeningNormative Statementyes
Req-2018Support appropriate newborn screening and follow-up2015 Priority ListThe system shall incorporate clinical decision support to assure newborn screening has been accomplished and that results have been followed up.Newborn ScreeningNormative Statementyes
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